{"id":99,"date":"2026-06-07T08:02:49","date_gmt":"2026-06-07T08:02:49","guid":{"rendered":"https:\/\/www.syndromedemalan.fr\/?page_id=99"},"modified":"2026-10-04T12:55:13","modified_gmt":"2026-10-04T12:55:13","slug":"malan","status":"publish","type":"page","link":"https:\/\/www.syndromedemalan.fr\/index.php\/malan\/","title":{"rendered":"Le Syndrome de Malan"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; next_background_color=\u00a0\u00bb#ECBE48&Prime; admin_label=\u00a0\u00bbAbout Section\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb7px|0px|77px|0px|false|false\u00a0\u00bb bottom_divider_style=\u00a0\u00bbcurve2&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb2_5,3_5&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb2_5&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttp:\/\/www.syndromedemalan.fr\/wp-content\/uploads\/2026\/05\/Logo-fond-transparent-PNG.png\u00a0\u00bb title_text=\u00a0\u00bbLogo fond transparent PNG\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb3_5&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_text_color=\u00a0\u00bb#ef823f\u00a0\u00bb header_font_size=\u00a0\u00bb63px\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; header_font_size_tablet=\u00a0\u00bb63px\u00a0\u00bb header_font_size_phone=\u00a0\u00bb32px\u00a0\u00bb header_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<h1>Le Syndrome de Malan : Comprendre pour Mieux Agir<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2&Prime; admin_label=\u00a0\u00bbAbout Row\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb1px||4px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttp:\/\/www.syndromedemalan.fr\/wp-content\/uploads\/2026\/06\/recherche.webp\u00a0\u00bb title_text=\u00a0\u00bbrecherche\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_radii=\u00a0\u00bbon|10px|10px|10px|10px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset2&Prime; box_shadow_horizontal=\u00a0\u00bb5px\u00a0\u00bb box_shadow_vertical=\u00a0\u00bb5px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb10px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#242424&Prime; text_font_size=\u00a0\u00bb18px\u00a0\u00bb text_line_height=\u00a0\u00bb1.6em\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<strong>\u00a0Le syndrome de Malan est un trouble g\u00e9n\u00e9tique rare et complexe qui touche des familles du monde entier.<\/strong><\/p>\n<p>Cette page a pour objectif de vous fournir une<strong> information compl\u00e8te et accessible<\/strong> sur ses causes, ses sympt\u00f4mes, son diagnostic et les meilleures pratiques de prise en charge.<\/p>\n<p>Parce que la connaissance est notre meilleure alli\u00e9e.[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#ECBE48&Prime; custom_padding=\u00a0\u00bb7px||4px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb||1px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_font_size=\u00a0\u00bb24px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font=\u00a0\u00bb|600|||||||\u00a0\u00bb custom_margin=\u00a0\u00bb||14px|||\u00a0\u00bb custom_padding=\u00a0\u00bb||1px|||\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime;]<\/p>\n<h2><strong>Sympt\u00f4mes &amp; Diagnostic :<\/strong> Identifier et Comprendre le Syndrome de Malan<\/h2>\n<p>[\/et_pb_text][et_pb_button button_url=\u00a0\u00bbhttp:\/\/www.syndromedemalan.fr\/wp-content\/uploads\/2026\/06\/guide-syndrome-malan.pdf\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbGuide du syndrome de Malan\u00a0\u00bb button_alignment=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_color=\u00a0\u00bb#3A3A2A\u00a0\u00bb button_bg_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb button_border_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb button_border_radius=\u00a0\u00bb63px\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; box_shadow_style=\u00a0\u00bbpreset2&Prime; box_shadow_horizontal=\u00a0\u00bb8px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb6px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb button_text_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; button_text_size_phone=\u00a0\u00bb16px\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_4,1_4,1_4,1_4&Prime; use_custom_gutter=\u00a0\u00bbon\u00a0\u00bb gutter_width=\u00a0\u00bb2&Prime; make_equal=\u00a0\u00bbon\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_padding=\u00a0\u00bb10px|14px|10px|14px|false|true\u00a0\u00bb border_radii=\u00a0\u00bbon|16px|16px|16px|16px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset2&Prime; box_shadow_horizontal=\u00a0\u00bb7px\u00a0\u00bb box_shadow_vertical=\u00a0\u00bb8px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb8px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_3_font=\u00a0\u00bb|600||on|||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#E2A146&Prime; custom_margin=\u00a0\u00bb||8px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>D\u00e9veloppement <strong>Neurologique<\/strong><\/h3>\n<p>[\/et_pb_text][et_pb_divider color=\u00a0\u00bb#cec1b3&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb||7px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#3A3A2A\u00a0\u00bb text_line_height=\u00a0\u00bb1.4em\u00a0\u00bb custom_margin=\u00a0\u00bb-4px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><strong>D\u00e9ficience intellectuelle<\/strong> l\u00e9g\u00e8re \u00e0 mod\u00e9r\u00e9e<\/p>\n<p>Retard de <strong>langage<\/strong> et de <strong>parole<\/strong><\/p>\n<p>Retard <strong>psychomoteur<\/strong><\/p>\n<p>Difficult\u00e9s d&rsquo;apprentissage<\/p>\n<p><strong>Hypotonie<\/strong> (faiblesse musculaire)<\/p>\n<p>Troubles de la <strong>coordination<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_padding=\u00a0\u00bb10px|14px|10px|14px|false|true\u00a0\u00bb border_radii=\u00a0\u00bbon|16px|16px|16px|16px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset2&Prime; box_shadow_horizontal=\u00a0\u00bb7px\u00a0\u00bb box_shadow_vertical=\u00a0\u00bb8px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb8px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_3_font=\u00a0\u00bb|600||on|||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#E2A146&Prime; custom_margin=\u00a0\u00bb||8px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3><strong>Traits Faciaux<\/strong> Distinctifs<\/h3>\n<p>[\/et_pb_text][et_pb_divider color=\u00a0\u00bb#cec1b3&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb||7px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#3A3A2A\u00a0\u00bb text_line_height=\u00a0\u00bb1.4em\u00a0\u00bb custom_margin=\u00a0\u00bb-4px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><strong>Macroc\u00e9phalie<\/strong> (t\u00eate plus grande)<\/p>\n<p><strong>Front<\/strong> pro\u00e9minent et haut<\/p>\n<p><strong>Fentes palp\u00e9brales<\/strong> inclin\u00e9es vers le bas<\/p>\n<p><strong>Nez large<\/strong> avec narines \u00e9vas\u00e9es<\/p>\n<p><strong>Menton<\/strong> pointu ou pro\u00e9minent<\/p>\n<p><strong>Oreilles<\/strong> bas implant\u00e9es<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_padding=\u00a0\u00bb10px|14px|10px|14px|false|true\u00a0\u00bb border_radii=\u00a0\u00bbon|16px|16px|16px|16px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset2&Prime; box_shadow_horizontal=\u00a0\u00bb7px\u00a0\u00bb box_shadow_vertical=\u00a0\u00bb8px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb8px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_3_font=\u00a0\u00bb|600||on|||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#E2A146&Prime; custom_margin=\u00a0\u00bb||8px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3><strong>Croissance<\/strong> &amp; <strong>Morphologie<\/strong><\/h3>\n<p>[\/et_pb_text][et_pb_divider color=\u00a0\u00bb#cec1b3&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb||7px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#3A3A2A\u00a0\u00bb text_line_height=\u00a0\u00bb1.4em\u00a0\u00bb custom_margin=\u00a0\u00bb-4px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p><strong>Surcroissance<\/strong> (taille et poids \u00e9lev\u00e9s)<\/p>\n<p><strong>Mains<\/strong> et <strong>pieds<\/strong> grands<\/p>\n<p><strong>Hyperlaxit\u00e9<\/strong> articulaire<\/p>\n<p><strong>Scoliose<\/strong> ou autres anomalies squelettiques<\/p>\n<p><strong>\u00c2ge osseux<\/strong> avanc\u00e9<\/p>\n<p><strong>Stature \u00e9lev\u00e9e<\/strong> d\u00e8s l&rsquo;enfance<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_padding=\u00a0\u00bb10px|14px|10px|14px|false|true\u00a0\u00bb border_radii=\u00a0\u00bbon|16px|16px|16px|16px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset2&Prime; box_shadow_horizontal=\u00a0\u00bb7px\u00a0\u00bb box_shadow_vertical=\u00a0\u00bb8px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb8px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_3_font=\u00a0\u00bb|600||on|||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#E2A146&Prime; custom_margin=\u00a0\u00bb||8px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Autres Manifestations<\/h3>\n<p>[\/et_pb_text][et_pb_divider color=\u00a0\u00bb#cec1b3&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb||7px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#3A3A2A\u00a0\u00bb text_line_height=\u00a0\u00bb1.4em\u00a0\u00bb custom_margin=\u00a0\u00bb-4px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p>Anomalies <strong>cardiaques<\/strong> (dans certains cas)<\/p>\n<p>Crises d&rsquo;<strong>\u00e9pilepsie<\/strong> (parfois)<\/p>\n<p><strong>Troubles du comportement<\/strong><\/p>\n<p>Caract\u00e9ristiques <strong>autistiques<\/strong><\/p>\n<p>Probl\u00e8mes de <strong>vision<\/strong> ou <strong>audition<\/strong><\/p>\n<p>Difficult\u00e9s <strong>alimentaires<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; prev_background_color=\u00a0\u00bb#ECBE48&Prime; next_background_color=\u00a0\u00bb#ffffff\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb use_background_color_gradient=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_direction=\u00a0\u00bb104deg\u00a0\u00bb background_color_gradient_stops=\u00a0\u00bbrgba(255,255,255,0) 0%|#fdffa3 100%\u00a0\u00bb background_color_gradient_start=\u00a0\u00bbrgba(255,255,255,0)\u00a0\u00bb background_color_gradient_end=\u00a0\u00bb#fdffa3&Prime; background_enable_image=\u00a0\u00bboff\u00a0\u00bb parallax=\u00a0\u00bbon\u00a0\u00bb parallax_method=\u00a0\u00bboff\u00a0\u00bb top_divider_style=\u00a0\u00bbwave\u00a0\u00bb bottom_divider_style=\u00a0\u00bbramp\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb background_color_gradient_direction=\u00a0\u00bb147deg\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bbrgba(255,255,255,0)\u00a0\u00bb custom_padding=\u00a0\u00bb20px|20px|20px|20px|false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|14px|14px|14px|14px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_margin=\u00a0\u00bb51px|auto||auto||\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.1em\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb28px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_3_text_color=\u00a0\u00bb#0A0000&Prime; header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h2>Quand faut-il consulter ?<\/h2>\n<p>Si votre enfant pr\u00e9sente un retard de d\u00e9veloppement, des traits faciaux inhabituels ou une croissance excessive, consultez un p\u00e9diatre qui pourra vous orienter vers un g\u00e9n\u00e9ticien pour des tests appropri\u00e9s.<\/p>\n<p><strong>Un diagnostic pr\u00e9coce est essentiel pour une prise en charge optimale.<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb background_color_gradient_direction=\u00a0\u00bb221deg\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bbrgba(255,255,255,0)\u00a0\u00bb custom_margin=\u00a0\u00bb35px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb20px|20px|20px|20px|false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|14px|14px|14px|14px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_3_text_color=\u00a0\u00bb#ef823f\u00a0\u00bb header_3_font_size=\u00a0\u00bb30px\u00a0\u00bb header_3_text_align_tablet=\u00a0\u00bb\u00a0\u00bb header_3_text_align_phone=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_align_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Les \u00e9tapes du diagnostic<\/h3>\n<ul>\n<li><strong>\u00c9valuation clinique<\/strong> : Examen physique complet, \u00e9valuation des traits faciaux, mesure de la croissance.<\/li>\n<li><strong>S\u00e9quen\u00e7age g\u00e9n\u00e9tique<\/strong> : Test ADN pour identifier les mutations du g\u00e8ne NFIX.<\/li>\n<li><strong>Imagerie c\u00e9r\u00e9brale<\/strong> : IRM pour d\u00e9tecter d&rsquo;\u00e9ventuelles anomalies structurelles.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_3_text_color=\u00a0\u00bb#ef823f\u00a0\u00bb header_3_font_size=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Les examens cl\u00e9s<\/h3>\n<p>S\u00e9quen\u00e7age de l&rsquo;exome<br \/>IRM c\u00e9r\u00e9brale<br \/>\u00c9chocardiographie<br \/>Tests cognitifs<br \/>\u00c9valuation orthophonique<br \/>Bilan ophtalmologique<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_3_text_color=\u00a0\u00bb#ef823f\u00a0\u00bb header_3_font_size=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Comprendre l&rsquo;origine g\u00e9n\u00e9tique<\/h3>\n<ul>\n<li><strong>G\u00e8ne NFIX<\/strong> : Situ\u00e9 sur le chromosome 19p13.2, crucial pour le d\u00e9veloppement neurologique.<\/li>\n<li><strong>Mutations de novo<\/strong> : La plupart des cas r\u00e9sultent de nouvelles mutations spontan\u00e9es, ce qui signifie qu&rsquo;elles ne sont pas h\u00e9rit\u00e9es des parents.<\/li>\n<li><strong>Conseil g\u00e9n\u00e9tique<\/strong> : Consultation recommand\u00e9e pour comprendre les risques de r\u00e9currence et les implications pour la famille.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_3_text_color=\u00a0\u00bb#ef823f\u00a0\u00bb header_3_font_size=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Prise en charge et traitements : accompagner au quotidien<\/h3>\n<p>Accompagnement multidisciplinaire et options th\u00e9rapeutiques pour optimiser le d\u00e9veloppement et le bien-\u00eatre.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb background_color_gradient_direction=\u00a0\u00bb221deg\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bbrgba(255,255,255,0)\u00a0\u00bb custom_margin=\u00a0\u00bb35px||35px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb20px|20px|20px|20px|false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|14px|14px|14px|14px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.1em\u00a0\u00bb header_3_text_color=\u00a0\u00bb#0A0000&Prime; header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb28px\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h2>Prise en charge &amp; accompagnement<\/h2>\n<h3>Strat\u00e9gies d\u2019accompagnement et th\u00e9rapies.<\/h3>\n<p>[\/et_pb_text][et_pb_image src=\u00a0\u00bbhttp:\/\/www.syndromedemalan.fr\/wp-content\/uploads\/2026\/06\/graphique-e1784795777223.gif\u00a0\u00bb title_text=\u00a0\u00bbgraphique\u00a0\u00bb show_in_lightbox=\u00a0\u00bbon\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb width=\u00a0\u00bb60%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb3_5,2_5&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb background_color_gradient_direction=\u00a0\u00bb221deg\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bbrgba(255,255,255,0)\u00a0\u00bb custom_margin=\u00a0\u00bb35px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb20px|20px|20px|20px|false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|14px|14px|14px|14px\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb3_5&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.1em\u00a0\u00bb header_3_text_color=\u00a0\u00bb#0A0000&Prime; header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb28px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h2>Des interventions sp\u00e9cifiques pour chaque besoin<\/h2>\n<h3>Le traitement du Syndrome de Malan est avant tout symptomatique et vise \u00e0 optimiser le d\u00e9veloppement de l&rsquo;enfant et \u00e0 am\u00e9liorer sa qualit\u00e9 de vie.<\/h3>\n<p><strong>Intervention pr\u00e9coce<\/strong> : Stimulation d\u00e9veloppementale d\u00e8s les premiers mois pour maximiser le potentiel de l&rsquo;enfant.<\/p>\n<p><strong>Orthophonie intensive<\/strong> : R\u00e9\u00e9ducation du langage oral et \u00e9crit, et mise en place de moyens de communication alternative si n\u00e9cessaire.<\/p>\n<p><strong>R\u00e9\u00e9ducation psychomotrice<\/strong> : Am\u00e9lioration de la coordination, de l&rsquo;\u00e9quilibre et des habilet\u00e9s motrices.<\/p>\n<p><strong>Soutien cognitif<\/strong> : Strat\u00e9gies d&rsquo;apprentissage adapt\u00e9es, renforcement des capacit\u00e9s intellectuelles.<\/p>\n<p><strong>Gestion comportementale<\/strong> : Techniques pour g\u00e9rer les troubles du comportement et favoriser l&rsquo;autonomie.<\/p>\n<p><strong>Traitements symptomatiques<\/strong> : Prise en charge m\u00e9dicale des complications sp\u00e9cifiques (\u00e9pilepsie, probl\u00e8mes cardiaques, etc.).<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.1em\u00a0\u00bb header_3_text_color=\u00a0\u00bb#0A0000&Prime; header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; header_2_font_size_phone=\u00a0\u00bb28px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h2>Les Avanc\u00e9es de la Recherche : L&rsquo;Espoir au Quotidien<\/h2>\n<p>La recherche sur le syndrome de Malan progresse gr\u00e2ce \u00e0 la mobilisation internationale des scientifiques et des associations. Nous suivons de pr\u00e8s les derni\u00e8res \u00e9tudes, les projets en cours et les pistes d&rsquo;am\u00e9lioration pour un futur meilleur.<strong> Chaque d\u00e9couverte est une \u00e9tape vers de nouvelles solutions.<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb2_5&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#ef823f\u00a0\u00bb custom_padding=\u00a0\u00bb12px|12px|12px|12px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#242424&Prime; header_2_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb header_3_font_size=\u00a0\u00bb20px\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb custom_margin=\u00a0\u00bb||2px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px|10px|10px|10px|true|true\u00a0\u00bb header_font_size_tablet=\u00a0\u00bb\u00a0\u00bb header_font_size_phone=\u00a0\u00bb24px\u00a0\u00bb header_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_text_align_tablet=\u00a0\u00bb\u00a0\u00bb header_2_text_align_phone=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_align_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h2>Les Th\u00e9rapies Compl\u00e9mentaires : Un Plus pour le D\u00e9veloppement<\/h2>\n<p>[\/et_pb_text][dsm_icon_divider use_icon=\u00a0\u00bbon\u00a0\u00bb font_icon=\u00a0\u00bb&#xf001;||fa||900&Prime; icon_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb use_icon_font_size=\u00a0\u00bbon\u00a0\u00bb icon_font_size=\u00a0\u00bb28px\u00a0\u00bb color=\u00a0\u00bb#EADAC7&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||-2px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dsm_icon_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_2_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_font=\u00a0\u00bb|700|||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_3_font_size=\u00a0\u00bb20px\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb8px||28px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px|10px|10px|10px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Musicoth\u00e9rapie<\/h3>\n<p>Stimulation cognitive et \u00e9motionnelle par la musique.<\/p>\n<p>[\/et_pb_text][dsm_icon_divider use_icon=\u00a0\u00bbon\u00a0\u00bb font_icon=\u00a0\u00bb&#xf1fc;||fa||900&Prime; icon_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb use_icon_font_size=\u00a0\u00bbon\u00a0\u00bb icon_font_size=\u00a0\u00bb28px\u00a0\u00bb color=\u00a0\u00bb#EADAC7&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||-2px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dsm_icon_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_2_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_font=\u00a0\u00bb|700|||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_3_font_size=\u00a0\u00bb20px\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb8px||28px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px|10px|10px|10px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Art-th\u00e9rapie<\/h3>\n<p>Expression cr\u00e9ative pour d\u00e9velopper la communication et la confiance en soi.<\/p>\n<p>[\/et_pb_text][dsm_icon_divider use_icon=\u00a0\u00bbon\u00a0\u00bb font_icon=\u00a0\u00bb&#xf6f0;||fa||900&Prime; icon_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb use_icon_font_size=\u00a0\u00bbon\u00a0\u00bb icon_font_size=\u00a0\u00bb28px\u00a0\u00bb color=\u00a0\u00bb#EADAC7&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||-2px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dsm_icon_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_2_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_font=\u00a0\u00bb|700|||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_3_font_size=\u00a0\u00bb20px\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb8px||28px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px|10px|10px|10px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>\u00c9quith\u00e9rapie<\/h3>\n<p>Th\u00e9rapie assist\u00e9e par le cheval pour am\u00e9liorer la motricit\u00e9, l&rsquo;\u00e9quilibre et le bien-\u00eatre \u00e9motionnel.<\/p>\n<p>[\/et_pb_text][dsm_icon_divider use_icon=\u00a0\u00bbon\u00a0\u00bb font_icon=\u00a0\u00bb&#xf5c4;||fa||900&Prime; icon_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb use_icon_font_size=\u00a0\u00bbon\u00a0\u00bb icon_font_size=\u00a0\u00bb28px\u00a0\u00bb color=\u00a0\u00bb#EADAC7&Prime; divider_style=\u00a0\u00bbdashed\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||-2px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dsm_icon_divider][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_2_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_font=\u00a0\u00bb|700|||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_3_font_size=\u00a0\u00bb20px\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_margin=\u00a0\u00bb8px||28px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px|10px|10px|10px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|15px|15px|15px|15px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h3>Hydroth\u00e9rapie<\/h3>\n<p>Exercices aquatiques pour renforcer le tonus musculaire et favoriser la d\u00e9tente.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb8px||3px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb||17px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.1em\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb28px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_3_text_color=\u00a0\u00bb#0A0000&Prime; header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h2>Aides et ressources : un soutien concret pour les familles<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_3,1_3,1_3&Prime; make_equal=\u00a0\u00bbon\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb9px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb use_background_color_gradient=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_stops=\u00a0\u00bb#ffffff 0%|#fdffa3 100%\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bb#fdffa3&Prime; custom_padding=\u00a0\u00bb16px|16px|16px|16px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|28px|28px|28px|28px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_3_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#EF823F\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb30px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_3_font_size=\u00a0\u00bb25px\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; sticky_enabled=\u00a0\u00bb0&Prime; header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h3>Droits et d\u00e9marches<\/h3>\n<p>Face \u00e0 la complexit\u00e9 administrative, l&rsquo;association vous informe et vous oriente. Voici les principales aides financi\u00e8res ou mat\u00e9rielles et les organismes \u00e0 contacter.<\/p>\n<ul>\n<li><strong>MDPH<\/strong> (Maison D\u00e9partementale des Personnes Handicap\u00e9es) : R\u00f4le, missions, d\u00e9marches pour la reconnaissance du handicap et l&rsquo;obtention des aides.<br \/>&gt; <a href=\"https:\/\/annuaire.action-sociale.org\/MDPH\/Annuaire.html\" target=\"_blank\" rel=\"noopener\" title=\"Annuaire MDPH\">Annuaire MDPH<\/a><\/li>\n<li><a href=\"https:\/\/www.service-public.gouv.fr\/particuliers\/vosdroits\/F12242\" target=\"_blank\" rel=\"noopener\" title=\"AAH\"><strong>AAH<\/strong> (Allocation aux Adultes Handicap\u00e9s)<\/a> : Conditions, montant, proc\u00e9dure de demande.<\/li>\n<li><a href=\"https:\/\/www.service-public.gouv.fr\/particuliers\/vosdroits\/F14202\" target=\"_blank\" rel=\"noopener\" title=\"PCH\"><strong>PCH<\/strong> (Prestation de Compensation du Handicap)<\/a> : Pour l&rsquo;aide humaine, technique, l&rsquo;am\u00e9nagement du logement et du v\u00e9hicule.<\/li>\n<li><strong>Autres aides<\/strong> : Allocation d&rsquo;\u00e9ducation de l&rsquo;enfant handicap\u00e9 (AEEH), Compl\u00e9ment AEEH, r\u00e9ductions fiscales, <span><a href=\"https:\/\/www.service-public.gouv.fr\/particuliers\/vosdroits\/F15132\" target=\"_blank\" rel=\"noopener\" title=\"AJPP\">AJPP<\/a>, <\/span>etc.<\/li>\n<\/ul>\n<p><strong>Conseil<\/strong> : N&rsquo;h\u00e9sitez pas \u00e0 nous contacter pour un accompagnement personnalis\u00e9 dans vos d\u00e9marches.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb use_background_color_gradient=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_stops=\u00a0\u00bb#ffffff 0%|#fdffa3 100%\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bb#fdffa3&Prime; custom_padding=\u00a0\u00bb16px|16px|16px|16px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|28px|28px|28px|28px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_3_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#EF823F\u00a0\u00bb header_3_font_size=\u00a0\u00bb25px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb30px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h3>Accompagnement<\/h3>\n<p>L&rsquo;aidant familial joue un r\u00f4le fondamental. Il est essentiel de se sentir soutenu et de conna\u00eetre les structures d&rsquo;aide existantes.<\/p>\n<ul>\n<li><strong>R\u00f4le de l&rsquo;aidant familial <\/strong> : Informations, soutien psychologique, groupes de parole.<\/li>\n<li><strong>Structures d&rsquo;accueil et de soutien<\/strong> : CAMPS (Centres d&rsquo;Action M\u00e9dico-Sociale Pr\u00e9coce), SESSAD (Services d&rsquo;\u00c9ducation Sp\u00e9ciale et de Soins \u00e0 Domicile), IME (Instituts M\u00e9dico-\u00c9ducatifs), associations de r\u00e9pit.<\/li>\n<\/ul>\n<p><strong>Conseil<\/strong> : Prenez soin de vous ! Des solutions de r\u00e9pit existent pour les aidants.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb use_background_color_gradient=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_stops=\u00a0\u00bb#ffffff 0%|#fdffa3 100%\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_end=\u00a0\u00bb#fdffa3&Prime; custom_padding=\u00a0\u00bb16px|16px|16px|16px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|28px|28px|28px|28px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_3_font=\u00a0\u00bbLora||||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#EF823F\u00a0\u00bb header_3_font_size=\u00a0\u00bb25px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb30px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.3em\u00a0\u00bb header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h3>Transport et mobilit\u00e9<\/h3>\n<p>La mobilit\u00e9 peut \u00eatre un d\u00e9fi. D\u00e9couvrez les dispositifs existants pour faciliter les trajets de votre enfant et de votre famille.<\/p>\n<p>&nbsp;<\/p>\n<ul>\n<li><strong>Taxi conventionn\u00e9<\/strong> : Prise en charge des transports m\u00e9dicaux.<\/li>\n<li><strong> VSL<\/strong> (V\u00e9hicule Sanitaire L\u00e9ger) : Conditions d&rsquo;utilisation et de remboursement.<\/li>\n<li><strong>Transports adapt\u00e9s<\/strong> (Prestation de Compensation du Handicap) : Services propos\u00e9s par les collectivit\u00e9s locales, associations.<\/li>\n<li><strong>Aides \u00e0 l&rsquo;am\u00e9nagement de v\u00e9hicule<\/strong> : Subventions pour l&rsquo;adaptation de v\u00e9hicules.<\/li>\n<li><strong>Carte Mobilit\u00e9 Inclusion (CMI)<\/strong> : Stationnement, priorit\u00e9.<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; admin_label=\u00a0\u00bbFooter Section\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb use_background_color_gradient=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_stops=\u00a0\u00bb#ffffff 25%|rgba(35,34,32,0.13) 100%\u00a0\u00bb background_color_gradient_overlays_image=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_start=\u00a0\u00bb#ffffff\u00a0\u00bb background_color_gradient_start_position=\u00a0\u00bb25%\u00a0\u00bb background_color_gradient_end=\u00a0\u00bbrgba(35,34,32,0.13)\u00a0\u00bb background_image=\u00a0\u00bbhttp:\/\/www.syndromedemalan.fr\/wp-content\/uploads\/2026\/05\/mains2-scaled.webp\u00a0\u00bb custom_padding=\u00a0\u00bb4px|0px|4px|0px|true|false\u00a0\u00bb saved_tabs=\u00a0\u00bball\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row admin_label=\u00a0\u00bbSubscribe\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; custom_margin=\u00a0\u00bb|||\u00a0\u00bb custom_padding=\u00a0\u00bb|||\u00a0\u00bb animation_style=\u00a0\u00bbzoom\u00a0\u00bb animation_intensity_zoom=\u00a0\u00bb5%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bbLora|600|||||||\u00a0\u00bb header_2_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_2_text_color=\u00a0\u00bb#D5783E\u00a0\u00bb header_2_font_size=\u00a0\u00bb40px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.1em\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb28px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb text_text_color=\u00a0\u00bb#000000&Prime; text_font_size=\u00a0\u00bb16px\u00a0\u00bb header_3_font=\u00a0\u00bb||||||||\u00a0\u00bb header_3_text_align=\u00a0\u00bbcenter\u00a0\u00bb header_3_text_color=\u00a0\u00bb#0A0000&Prime; header_3_font_size_tablet=\u00a0\u00bb30px\u00a0\u00bb header_3_font_size_phone=\u00a0\u00bb21px\u00a0\u00bb header_3_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb40px\u00a0\u00bb]<\/p>\n<h2>Votre soutien fait la diff\u00e9rence : aidez-nous \u00e0 agir !<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_text_color=\u00a0\u00bb#141414&Prime; text_font_size=\u00a0\u00bb18px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p>Comprendre le Syndrome de Malan est une \u00e9tape cruciale. Agir pour nos enfants et leurs familles en est une autre, tout aussi essentielle. <strong>Chaque don, chaque geste de soutien, nous permet de continuer nos missions : informer, accompagner, rompre l&rsquo;isolement et faire avancer la recherche.<\/strong><\/p>\n<p>Ensemble, nous pouvons construire un avenir plus serein pour les personnes atteintes du syndrome de Malan.<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=\u00a0\u00bb4.27.8&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb background_color=\u00a0\u00bb#ffffff\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; custom_padding=\u00a0\u00bb||24px||false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|12px|12px|12px|12px\u00a0\u00bb]<iframe id=\"haWidget\" allowtransparency=\"true\" scrolling=\"auto\" src=\"https:\/\/www.helloasso.com\/associations\/association-syndrome-de-malan-france\/formulaires\/1\/widget\" style=\"width: 100%; height: 750px; border: none;\" onload=\"window.addEventListener('message', function(e) { const dataHeight = e.data.height; const haWidgetElement = document.getElementById('haWidget');<!-- [et_pb_line_break_holder] -->  if (dataHeight > parseFloat(haWidgetElement.height || 0)) { haWidgetElement.height = dataHeight + &lsquo;px&rsquo;;}})\u00a0\u00bb><\/iframe>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Le Syndrome de Malan : Comprendre pour Mieux Agir\u00a0Le syndrome de Malan est un trouble g\u00e9n\u00e9tique rare et complexe qui touche des familles du monde entier. Cette page a pour objectif de vous fournir une information compl\u00e8te et accessible sur ses causes, ses sympt\u00f4mes, son diagnostic et les meilleures pratiques de prise en charge. Parce [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-99","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Le Syndrome de Malan - Asso Syndrome Malan<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.syndromedemalan.fr\/index.php\/malan\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le Syndrome de Malan - Asso Syndrome Malan\" \/>\n<meta property=\"og:description\" content=\"Le Syndrome de Malan : Comprendre pour Mieux Agir\u00a0Le syndrome de Malan est un trouble g\u00e9n\u00e9tique rare et complexe qui touche des familles du monde entier. Cette page a pour objectif de vous fournir une information compl\u00e8te et accessible sur ses causes, ses sympt\u00f4mes, son diagnostic et les meilleures pratiques de prise en charge. 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